Comprehensive care for individuals with hemophilia, von Willebrand's and related bleeding disorders in Region VI is provided through a network of Hemophilia Treatment Centers (HTC's), satellite centers, and through hospitals and clinics located in Region VI.
Region VI includes the states of Texas, Louisiana, Arkansas, and Oklahoma. Each of the Centers provides a full range of diagnostic and treatment facilities with staff trained and dedicated to the effort of providing services to hemophilia patients. They all have at least one nurse providing full time hemophilia care and a psychosocial service provider available to patients. Additionally, a physical therapist, dentist, orthopedist and other medical professionals are available through the center. They will provide comprehensive evaluations where these individuals will be available at a single location and time to evaluate the individual and provide care for their bleeding disorder.
Comprehensive Care at Gulf States HTC
Parents Empowering Parents (PEP)
According to data collected by the Centers for Disease Control, persons with hemophilia who attend HTC's at least once a year have a 60% reduced risk of death compared to those who do not. Also, those who visit the HTC have fewer reported emergency room visits and complications.
National Prevention Program
The goal of the National Prevention Program is to reduce the
complications of bleeding disorders. The NPP’s theme is “Do the 5”:
- Get an annual comprehensive check-up at a hemophilia treatment center
- Get vaccinated — Hepatitis A and B are preventable
- Treat bleeds early and adequately
- Exercise to protect your joints
- Get tested regularly for blood borne infections
Steps for Living
A Program of NHF for all stages of life, and link to the NHF Steps for Living page.
Victory for Women
An awareness campaign related to bleeding disorders in women. http://www.victoryforwomen.org/
The hemophilia community is fortunate to have abundant scholarships available to current and future college students with bleeding disorders to help them get the education they need to live the lives they dream.
Scholarships for Children with Disabled Parents