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Resources

Treatment Centers

Comprehensive care for individuals with hemophilia, von Willebrand's and related bleeding disorders in Region VI is provided through a network of Hemophilia Treatment Centers (HTC's), satellite centers, and through hospitals and clinics located in Region VI.

Region VI includes the states of Texas, Louisiana, Arkansas, and Oklahoma. Each of the Centers provides a full range of diagnostic and treatment facilities with staff trained and dedicated to the effort of providing services to hemophilia patients. They all have at least one nurse providing full time hemophilia care and a psychosocial service provider available to patients. Additionally, a physical therapist, dentist, orthopedist and other medical professionals are available through the center. They will provide comprehensive evaluations where these individuals will be available at a single location and time to evaluate the individual and provide care for their bleeding disorder.

Comprehensive Care at Gulf States HTC

Parents Empowering Parents (PEP)
According to data collected by the Centers for Disease Control, persons with hemophilia who attend HTC's at least once a year have a 60% reduced risk of death compared to those who do not. Also, those who visit the HTC have fewer reported emergency room visits and complications.

National Prevention Program
The goal of the National Prevention Program is to reduce the
complications of bleeding disorders. The NPP’s theme is “Do the 5”:

1. Get an annual comprehensive check-up at a hemophilia treatment center
   
2. Get vaccinated — Hepatitis A and B are preventable
   
3. Treat bleeds early and adequately
   
4. Exercise to protect your joints
   
5. Get tested regularly for blood borne infections

First Step
A program that welcomes families of infants and young children into the bleeding disorder clinics.
First Step organizes small get-togethers in which new families can receive education and can meet other families with similar challenges. New families can also be linked trhough a new family mentoring program.

Project Red Flag
An awareness campaign related to bleeding disorders in women.

College Scholarships
The hemophilia community is fortunate to have abundant scholarships available to current and future college students with bleeding disorders to help them get the education they need to live the lives they dream.

Scholarships for Children with Disabled Parents

National Hemophilia Foundation Hemophilia Federation of America Access Program 888.770.7010 Bleeding Disorders Legal Hotline 800.520.6154 World Federation of Hemophilia Yahoo! Support Groups Research and Medical Information: National Heart, Lung and Blood Institute American Society of Gene Therapy National Institute of Allergy and Infectious Diseases Food and Drug Administration Food and Drug Administration Recall Information www.HealthTree.com Comprehensive Hemophilia Care Region VI - Arkansas, Louisiana, Oklahoma, Texas Email contact: john-drake@austin.rr.com http://www.hemophiliaregion6.org/index.html Committee of Ten Thousand Patients Notification System (notification system for product recall) 1-888-UPDATE-U www.patientnotificationsystem.org Medic Alert 1-888-633-4298 www.medicalert.org LA Kelley Communications, Inc. (original educational publications, scholarship listings and programs) 1-800-249-7977 www.kelleycom.com Emergency Care Website (a reference for medical professionals give this website information to ER personnel) www.hemophiliaemergencycare.com