
Officers
Executive Director - Debbie de la Riva
Debbie joined the Lone Star Chapter shortly after her
son was born with severe hemophilia A. It did not take long before she
was "hooked" because she was able to see the difference that a strong
chapter can make in the lives of those affected with a bleeding
disorder. She also has a daughter, Cristina, and a wonderful husband
who is very active in the chapter.
President - Brian Compton
First Vice-President - Regina Aguirre
(consumer)
Regina has a young, active son with severe hemophilia. Early in her
term, she expressed a desire to work with the families in the
McAllen area and as a result she has formed a very important bridge
between the Chapter and those families.
Second Vice-President - Gina
Koch
(consumer)
Gina and her husband, Steve, have a school aged son with hemophilia.
Gina has been an active board member for many years and has always
offered good advice on matters concerning this community.
Treasurer - Allison Pohl
(consumer)
Allison has a young son with hemophilia and became very active in
the Chapter from the beginning. Allison and her husband, Pat, have
already helped with the First Step group, became parent leaders in
the PEP Program, and co-chaired the auction portion of the Casino
Night.
Secretary - Brian Compton
(consumer)
Brian is another board member who became very active from the time
their child was born with hemophilia. He is currently the Chapter
liaison to Camp Ailihpomeh. He also chaired a toy drive last
Christmas that brought joy to many of our families in need.
Trustees
Matt Schmidt
(consumer)
Matt Schmitt is a new addition to the board and has severe
hemophilia A. He is currently attending Texas Christian University
in Fort Worth, Texas. He has attended hemophilia camp since he was
seven years old and was a counselor last summer. He is the youngest
member on the board and would like to add a new, youthful voice for
the board.
Vicki Jefferson
(consumer)
Vicki, a 1st year trustee on the board and has been a member of the
LSC for 11 years. She has a 12 year old son with Von Willebrands
Disease - Type II-B , diagnosed at 18 months old. Vicki has devoted
time volunteering with the chapter throughout the years. She has since
been trained to "train-the-trainer" and to spearhead the
"Woman-to-Woman" group for the "Red Flag Project" in the LSC area. She
strives to educate at least 900 women in the community by the end of
2005 about possible undiagnosed bleeding disorders, such as Von
Willebrands Disease.
Kelley Buchanan
Kelley is the mother of three children and her
youngest has severe hemophilia. She has been a board member for four
months; however, she has been very active on the Casino Night
Committee and participates in legislative initiatives.
Directors
San Antonio - Holly Davis
El Paso - Vacant
McAllen - Mirna Hernandez
Medical Advisors
Ed Kuebler, LMSW-ACP
Gulf States Hemophilia and Thrombophilia Treatment Center
(Social Worker)
Ed has served on the board in an official capacity for 6 years;
however, he has been active in the Chapter for many years. He works
diligently with the Executive Director in a positive and
collaboratively manner to promote educational/support and advocacy
issues. He has served as camp director for Camp John Marc and
organizes the Women's Retreat each year.
Aleida Starks, Nurse
Texas Children's Cancer Center and Hematology Service
Industry Advisors
Debbie Nelson
Wyeth/Genetics Institute
John Records
Aventis Behring
Charlene Signorino
Caremark/Choice Source Therapeutics
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