The goal of the National Prevention Program is to reduce the
complications of bleeding disorders. The NPP’s theme is “Do the 5”:
Get an annual comprehensive check-up at a hemophilia treatment center
Get vaccinated — Hepatitis A and B are preventable
Treat bleeds early and adequately
Exercise to protect your joints
Get tested regularly for blood borne infections
A program that welcomes families of infants and young children into the bleeding disorder clinics.
First Step organizes small get-togethers in which new families can receive education and can meet other families with similar challenges. New families can also be linked trhough a new family mentoring program.
An awareness campaign related to bleeding disorders in women.
The hemophilia community is fortunate to have abundant scholarships available to current and future college students with bleeding disorders to help them get the education they need to live the lives they dream.
Access Program
888.770.7010
Bleeding Disorders Legal Hotline
800.520.6154
Research and Medical Information
Comprehensive Hemophilia Care
Region VI - Arkansas, Louisiana, Oklahoma, Texas
Email contact: john-drake@austin.rr.com
Committee of Ten Thousand
Patients Notification System
(notification system for product recall)
1-888-UPDATE-U
Medic Alert
1-888-633-4298
LA Kelley Communications, Inc. (original educational publications,
scholarship listings and programs) 1-800-249-7977 www.kelleycom.com
Emergency Care Website
(a reference for medical professionals
give this website information to ER personnel)
Treatment Centers
Comprehensive care for individuals with hemophilia, von Willebrand's and related bleeding disorders in Region VI is provided through a network of Hemophilia Treatment Centers (HTC's), satellite centers, and through hospitals and clinics located in Region VI.
Region VI includes the states of Texas, Louisiana, Arkansas, and Oklahoma. Each of the Centers provides a full range of diagnostic and treatment facilities with staff trained and dedicated to the effort of providing services to hemophilia patients. They all have at least one nurse providing full time hemophilia care and a psychosocial service provider available to patients. Additionally, a physical therapist, dentist, orthopedist and other medical professionals are available through the center. They will provide comprehensive evaluations where these individuals will be available at a single location and time to evaluate the individual and provide care for their bleeding disorder.
Comprehensive Care
at Gulf States HTC
Parents Empowering Parents (PEP)
According to data collected by the Centers for Disease Control, persons with hemophilia who attend HTC's at least once a year have a 60% reduced risk of death compared to those who do not. Also, those who visit the HTC have fewer reported emergency room visits and complications.
The Lone Star Chapter of the NHF
10500 Northwest Freeway Suite 226 Houston, TX 77092
Phone: 713-686-6100 Fax: 713-686-6102
Hemophilia Legal Phone Line 1-800-520-6154
Disclaimer: The information contained on the Lone Star Chapter (LSC) web site is provided for your general information only. LSC does not give medical advice or engage in the practice of medicine. LSC under no circumstances recommends particular treatment for specific individuals and in all cases recommends that you consult your physician or local treatment center before pursuing any course of treatment.
All information and content on this web site are protected by copyright. All rights are reserved. Users are prohibited from modifying, copying, distributing, transmitting, displaying, publishing, selling, licensing, creating derivative works, or using any information available on or through the site for commercial or public purposes.
Copyright 2005 Lone Star Chapter of the National Hemophilia Foundation. All rights reserved.
